"In 2008, Simon Fitzmaurice was diagnosed with ALS, or Lou Gehrig's disease. He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive. In [this book], the young filmmaker, a husband and father of five small children, draws us deeply into his inner world. Told in simply expressed and ... stark prose, it is [a] ... journey into a life that, though brutally compromised, is lived more fully than most, revealing at its core the potent power love has to carry us through the days"-- Provided by publisher.